When: Jan. 10 @ 6:00
Who: 4 group members and their partners
Why: because we're awesome, love pizza an want to share our experiences
I had so much fun getting together with some fellow sleepy heads to talk about our sleep disorders and how it effects multiple areas of our lives. There is something special communing with others who know where you're coming from without judgement or hesitation.
We made new connections on other auto immune disorders, histamine issues, vitamin deficiencies and common side effects and symptoms.
We are hoping to have others join us for the next meeting soon. We'd like to come up with an event to raise awareness for narcolepsy. An idea we had was bed races!! Literally putting wheels on a bed and racing them. Hilarious! I like the idea of PJ bowling:)
I'm so very happy to have made new friends who know where I'm coming from. I'm not crazy, lazy, pathetic or helpless. I'm a warrior just trying to make it through this crazy life with narcolepsy.
One member stated the sleepiness part of narcolepsy isn't the main problem but the most talked about. I want people to know we are dealing with many other issues such as weight gain, shaky hands, cataplexy, anxiety, social phobia, forgetfulness, vitamin deficiency and prone to additional auto immune disorders.
Let me know if you'd like to join us on our next adventure!! It was a blasty blast
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