Sunday, January 22, 2017

Sleeping Beauty

Well, it looks like I took a 2 year nap from this blog. Ooops! I had actually forgot about it until I was cleaning up my facebook page and I saw that I had "NAP SO HARD" tied to my account. There is some good stuff on here! I'm loving the playlist I made!

But guess what? Two years later and Narcolepsy still sucks. I have a kid now. He is 12 months old and my husband and I are expecting baby #2 in June. Let me tell you, I was tired before pregnancy and motherhood but this is a whole new level of crazy. IT. NEVER. STOPS!

Since getting pregnant in the spring of 2015, I have "lost" 3 jobs. One I was straight up asked to leave. That's illegal, I know. I fought it but they came up with some other excuse. The next was a PRN position but I was having a hard time working only weekends since that was the only time the HUBBY and I got to hang out together. Then when I found out I was pregnant again this summer, my sleep specialist told me "no more driving". Now, I'm working full time at a job I really enjoy! I'm hoping my N and C doesn't interfere. Have any of you every been "let go" for your N or C? Let's talk!

Let's also talk medication. I'm currently taking Modifinal, a generic of Nuvigil. It's working pretty well actually. I was prescribed this after finding out about baby #2. I stopped my Xyrem and Adderall right away but it was too dangerous for me to be off of all medication for long. My sleep specialist, Dr. Watson from Vanderbilt University Hospital has me taking 2.5 mL of Xyrem twice a night and 200 mg of Modifinal in the morning and 100 mg in the afternoon as needed. If you have questions or comments about taking sleep meds while pregnant please let me know and we can talk! It wasn't an easy decision but for me it was the best one.

I want to keep up on this blog because I know there are a plethora of PWN who have A BAZILLION questions (me included) or people who just want to laugh together at the ridiculousness this disorder causes! 


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